Tag: Gratitude

La Mirada Ave, Hollywood CA ’77

La Mirada Ave, Hollywood CA ’77

who knows why i capitalize things or write the way i do. i’m not a professional and i failed 10th grade english. the transition from junior high school in 9th grade to high school at 10th grade was when my life began to fall apart…

13 – 15ish were the years living with my father on a street called La Mirada Avenue in Hollywood California. a classic hollywood neighborhood in between santa monica and sunset blvd. little armenia i think its dubbed now which i find kinda odd and offensive but that’s another topic…

traditional as well as side by side spanish style stucco duplexes co-mingled with 50’s retro apartment buildings, replete with large lettering, backlighting and landscaping. some stand alone classic california bungalow’s mixed with various corner stores upstair apartments and a new thing called a mini strip mall made for a diverse mix of people. rick dees’ disco duck was popular at the local laundromat.

le conte junior high was just around the corner which made getting to school easy in the morning. le conte and hollywood high schools were open campuses back then. on a trip to L.A a few years back they looked more like prisons which was sad.

7th grade in 1977 is when i was abruptly dropped into the city of hollywood. uprooted from a year of stability and safety where i was finally learning coping skills. a city where everything and everyone was completely new to me…including living with my own father.

i had spent my 6th grade year living in arizona with my grandfather and other aunts and uncles because my father had sent me there for a summer and then didn’t want me back…and then suddenly he yanked me from where i was perfectly comfortable living and it changed everything…forever.

1977 hollywood was a huge change from living on a farm in arizona. a place with wide open spaces a sense of routine and grounding were the best thing for me back then. so when it all changed to having to live in a one bedroom apartment stacked up with 8-10 other units, it was all too much for me. i’d try to tell my dad but he didn’t get it. he never did when it came to things i could and couldn’t handle.

i don’t want to go too far back tonight so just some quick back story on meds and ADD w/Hyperactivity disorder.

i had lived in arizona before when i was 7 and had to spend 2nd grade there as well. this is when ritalin and eventually dexadrine became part of my life and would continue until i would come back for 6th grade. the same year my grandfather threw out the drugs and taught me how to farm and keep busy. it was the healthiest i had ever been…ever. even my childhood dr. was surprised to see me go from a sickly kid on 3 different meds to a strapping teen farm kid who was happy and healthy.

i would come to be in hollywood at the strong objection of my grandfather and and aunt who was only 18 herself at the time. i also didn’t know they wanted me to stay until just last year when my aunt and i began to reconnect over the health of my now ailing father. she told me they both told him he should leave me where i was but he didn’t. that’s a hard feeling for me to reconcile even today. it’s difficult to stay away from the thoughts of ‘if only’ he had just left me where i was. it’s not productive but it is my default programming. work in progress…

the desert offered me something no one had ever bothered to ask me about in all of those childhood psychologist pick your brain discussions. the peace and solitude of wide open spaces with stars that lit up the night sky as far as the eye could see. the smell of rain or a thunderstorm on the horizon. the smell of the creosote bushes on the breeze as a wall of rain and lightening sweep through…i wish i was there right now.

teenage years are rough enough and when you’ve been yanked all over the place your entire life all i wanted by the age of 11 was to get off the fucking carnival ride of drama that my father created for my mother and myself and just be left the fuck alone…i’m here because of you jackass, go live your life and leave me alone i would cry into my pillow. i didn’t want to leave.

noise. noise is the single biggest trigger in my life. it was a trigger throughout my entire childhood at school and no one would ever listen to me. i’m putting the emphasis on school because that was my father’s idea of how parenting was supposed to work. you send your kid to school and they baby sit you, that’s what his taxes paid for you know. his idea of fatherhood was basically financial meaning up until 7th grade he had always

paid other people to take care of me. paid-them-to-board-me-like-a-fucking-pet.

1st grade was when i lived with my grandmother on my mothers side, the years when the sexual abuse began, and 3rd through 5th grade i lived with people we weren’t even related to and i were people i didn’t even know. it’s no wonder i craved the stability of arizona and the time with my grandfathers side of the family. nothing bad ever happened there, it was where i wanted to stay you idiot, couldn’t you see that and not be selfish? no, that was too much to expect…another theme in our relationship. his needs always came first and my disappointment was something he hated. he hated it because i could never hide it, i could never hide my feelings not then and not even today.

as of last december, he still hates it…

we’ve all had those times when you’re told “Oh just ignore them, it’s no big deal.” and i get it. for most people it isn’t a big deal, you learn to tune it out and it becomes part of growing up. trust me i toooootallly get it. but…with ADHD and meds, well that’s a whole other ball of wtf is going on in my brain?!? did they reeeally know what the long term effects would be for meds at that age and for that duration? 7-15? that’s a long time if you ask me, oh that’s right. kids…seen, not heard…

noise, especially repetitive noise still makes me lose my shit. city living and apartment living in particular is a noise and scenario i’ve been running from my whole life. the thought of falling so far down the economic ladder that that’s where i end up again terrifies me. not so much my apartment living in boston but those of the L.A. type. thin walls of cheap and expeditious stucco, shared stairway landings and trying to block out the sound or visual movement of people less than 15 feet from your screen door. THAT kind of city apartment proximity…

while my health may be in the shitter right now, i am grateful that despite the route my life taken, at least i have a roof over my head and the only noise i have for company at the moment is my ticking cuckoo clock. i’m thoroughly grateful for moments like these. moments of unbelievable quietness, peace and solitude in order to organize my thoughts and expectations for the road ahead.

hollywood was noisy and close proximity apartment living. sometimes good sometimes not, but definitely not quiet. the quiet older married couple downstairs, the single lady across the hall and the armenian family below them made up our front quadrantof the building. that was in our first la mirada building before moving to a two bedroom just up the street.

funny how tonight’s emphasis is on noise and basketball. two things i hate the most as a kid. i mean i loved hanging out at school and stuff but sports totally weren’t my thing. the only reason my dad is even part of this writing is because he would often come and play after school. on one hand i loved that we were spending time together but on the other hand he didn’t hide how he felt about me not being good at sports either. this would become a common theme with us. what was wrong with me and why i couldn’t be like him. he never missed an opportunity to verbalize or physically lash out about it either.

to get through the health challenges ahead i’m going to have to deal with how it is that he triggers me today. and by triggers i mean being triggered when asked about my parents or childhood/familial history which is part and parcel when interacting with dr’s and hospitals.

as i write this i’m struggling with my fingers not working like they used to. keeping my arms raised to type becomes fatiguing and my wrists and right elbow feel like i just want to rip them off from the constant pain. i’m way past over the counter meds, which never worked anyway, and now i really do have to see a dr. which absolutely terrifying for me. the probing questions always lead to an un-rehearsed question i hadn’t planned for and then there’s the whole body touching thing.

i’m definitely ‘not there’ yet at all…

i was watching an old james garner movie called “Mister Buddwing” one night and then it clicked. Probing. Probing questions are what cause my anxiety to go through the roof and now i finally know why!

i found it channel surfing one night, TCM had been plugging it the week so i figured why not and what’s not to like about 1966 NYC?

the architecture, the style, the costumes and jazz. not to mention Jean Simmons, Suzanne Pleshette, Katharine Ross and Angela Lansbury. man wakes up in central park, has amnesia, then tries to piece it all together retracing his steps with each woman.

apart from the visual eye candy ala a 1966 film set in NYC, it’s still a drama dealing with some very tough subject matter.

Mister Buddwing is a made up name until he can put the pieces of his memory back together while various storylines play out with the female characters. in one scene a man asks to share a table with him while eating lunch. Buddwing seems put off but says yes.

then the barrage of questions start. the usual small talk typical of a 1966 nyc urban setting. the, what kinda work, where ya from ,what’s yer name kinda stuff. all things Buddwing can’t answer so he bs’s the pestering fuck until he blows up at the rapid fire bullshit!

Bing Bing Bing! We a winner! – that’s me to a fucking tee!

when i first saw the scene i hadn’t realized another twenty minutes had passed before i snapped back to the present. my mind had been tumbling the thought over and over that that’s exactly what happens to me but for one small difference.

i don’t ‘want’ to remember things people ask me, i never have. not that i can’t, i really really don’t want to and if you keep pushing me i will explode.

once my father uprooted me like he did and then proceeded to abdicate any and all responsibility for my difficulty adjusting from farm to city, i began running away from home and living on the streets doing things to survive a 14yo shouldn’t have to…those are the parts i don’t want to remember.

unraveling how my #anxiety and #ptsd manifest itself today has been a very long journey indeed. but. now that i have some distance from the holidays, i need to go back to forgetting things again. that’s not a bad thing and it’s not a negative commentary on my father either. it just means means i’ve found a few more pieces of the puzzle and that’s half the battle.

if i’m going to get through the medical hurdles ahead i’m going to have to work on familial triggers and pre-empt them ahead of time. i’m going to have to practice being asked the same questions over and over and over again while not losing my shit – especially when it comes to my father and his medical history.

i can’t let him rob me of a future, i just can’t.

i don’t ask why so much anymore when it comes to how or why life unfolds they way it does. it’s counter-productive and robs you of the present. i mean when a random movie can trigger an insight like that it’s pretty hard to not to be grateful.

grateful for something like the simple gift of clarity. grateful i’m still here. grateful to have found another piece of myself…

…end brain dump

Dear Dad, thank you for calling…

Dear Dad, thank you for calling…

I look at it this way Pops. Our futures have intertwined so that both us may come to know a final peace and understanding of ourselves. I’ve always known the only way through any or all of this was was by having to find a way to not only forgive and forget, but to also remember the love that was there as well.

If you’re willing to reach out today and ask for help, and I’m more than touched that you did. Than let’s find that peaceful journey for you to the next chapter of you life and in turn both our lives as father and son. I picked a beautiful spot by a pond with wildlife galore. Come and enjoy it with me…

I’m sorry your wife wants to move on right now. I can’t imagine how difficult or painful that must be while continuing to combat the effects of parkinson’s on a daily basis. We can and will find a way to provide better for you including living with me in a two bedroom home already outfitted with support bars in the bath and shower and your own bedroom to boot. (I planned it that way when I moved here two years ago,)

You’ve always trusted me to handle complex paperwork for you. When I was younger and there were all sorts of health insurance forms or union documents to read and figure out you always turned to me for help. It was out bonding time together. I loved when you’d trust me because you knew I was smart and I’d get a kick out of seeing you smile like “Oh yeah, I get it now. Thanks!” I never knew it was from the dyslexia you’d grown up with all your life. I enjoyed the trust and you trusted me in turn.

I was proud to be the son of a union factory worker. You worked you way to shop steward by reading and re-reading all of the contracts and union books. You always had a strong sense of right and wrong when it came to the working man and you’d go to bat for them. Some of the best memories I have is going to union hall meetings with all the cigarette smoking and guys yelling at the mic;s in the aisles. You never gave up and you never took a hand out either. I remember more than a few strikes and picket lines too.

I’ve never forgotten where I came from Pops…

I can safely say that after spending more than just a few 24 hours “on the inside” of more than a couple dozen rehabs and psych wards. I fully understand the fear of having your life upended and landing somewhere when you no longer decide what bedtime is or where or when you get to take a walk. It’s scary and I totally get it. That’s why I need you to trust me now and let’s get you someplace safe. Hopefully with me here in Massachusetts. If you’re going to need 24 hour care for medication reminders every three hours, I’m more than willing to do that for you.

I’m glad you called this evening. And I’m even more glad that you acknowledged I was angry but that you were willing to move on. That meant a lot to me. So if you’ll trust me once again to get you to the next step I’m ready when you are.

Your Son, ~R

Emotional Rubber Bands…

Emotional Rubber Bands…

rubber bands, whiplash, herky jerky, it’s all the same when it comes to my family and it simply can’t continue like this. i have to choose not only my mental health over my family but also my physical health as well.

two years without health care is a long time when it comes to reestablishing healthcare especially when it comes to specialists. with my families history of colon and prostrate cancers, the first up was the new GI which started a cascade of #ptsd and #anxiety symptoms.

i did my homework and made sure to bring all of my medical records from the previous medical system to expedite the process and also to show that i was informed and cooperative new patient. the dr.’s extremely knowledgeable which is why i chose him so that’s a good thing. what i hadn’t planned on was the aggressive push for even more medical info when it came to my father…

these days i can relate to how my mother always had a hard time with dr’s and hospitals. it’s all the questioning even though it’s right there in black in white that’s the trigger. no one wants to recall their past when it’s riddled with land mines. it’s a friggin’ war zone and when one goes…they ALL go.

anywho… i had prepped like a good student…four color coded folders for each speciality in case he asked. the g.i. folder was the largest and had every letter, mri, sigmoid, tech notes, xray notes, pcp notes…”do you have the results of your father’s last colonoscopy?” “can you get them?” “you do have power of attorney don’t you?” “these are things you’re legally entitled to you know.” “i’m just trying to take what you provide me and turn it into science.” he says gesturing from outstretched hands at me motioning to random notes onto one sheet of paper because the medical terminal was down… really? no…are you fucking kidding me???

of course he was an hour late and i hit grid lock rush hour traffic right at five thirty, an hour and half just to get out of boston via route nine. it’d be two more hours before i was finally back home. exhausted, not angry or frustrated, just frazzled like shell shock and everything hurt. my stomach, my head, my body, just everything like a spiral…

who knew the next jolt was to hit the very next day. yep, the voicemail from my father asking for help for what i’m guessing may be his final wishes. i mean, i’m compassionate to what he’s going through, but realistic just the same. i mean, it doesn’t change what he’s done but that’s not the point. the point is moving on and still being able to live with myself.

do i have to forgive him? i already had in a way. i mean after our last parting two summers ago, i had already began to do just that, it was what it was and move on. i knew these’s dr’s would be key and i still have three more to fit in by january. oh, and it’s winter which i haven’t driven in for at least thirty years.

yeah, forgot that one. i had to learn how to drive two years ago after being able to walk, subway or taxi anywhere in the city of boston and now i have to drive just to get coffee. i’m not whining on that one, that accomplishment i feel really proud of actually. from finding a driving school to sponsor my road test to the registry for the written, i earned that one.

however…

while i was comfortable with having to make the trade off of country driving over city driving. i hadn’t anticipated the lack of quality specialists here on the cape. the largest and closest healthcare system is the one i’m trying to leave and also doesn’t have the best track record. all my neighbors do the same so i’m not alone in how most of rural mass. thinks about specialist healthcare which is kind of a shame. boston is a great teaching hub and it certainly has innovation on its side. what it does lack though is a broader network of care for all regions and especially those beyond just the greater boston area.

switching from as needed to daily medication was a huge leap for me but it’s necessary if i have to rely on a car for everything. when i lived in the city if i had to run out for coffee or a sandwich and cat food. even in the worst weather or worst of winter colds, i could usually muster a coat maybe some sunglasses winter boots and headphones for a block and a half to the corner bodega. fun little place on the edge of villa victoria called Casa Cuong, just the basics in it’s two small yet well stocked aisles… i can recall the rush of hot air from the ice cream coolers when you open the door in winter like it’s just outside my front door now.

i loved the juxtaposition of corners here in the south end. Casa Cuong with its treasure trove of goya, kix, friskies and klondike bars on one corner. venti iced coffee, turkey wrap, yogurt w/granola and peppermint bark at Starbucks on the other. total time out and back was about twenty minutes maybe thirty when dressing for winter.

nowadays twenty minutes seems like a luxury. a luxury in that it could take me twenty minutes just to get through tying my shoes and getting on some jeans and a shirt if i’m real lucky. i’m winded at just about anything so i have to stop about every fifteen minutes to sit, catch my breath, take the next incremental step and so forth.

you get the gist…

i miss the city for a lot of reasons chief among them is it was my home for my entire adult life until 2016. there’s not an inch of of it i can’t recall and that’s a huge blessing on my journey.

if there’s one thing i’ve learned while emerging from this self imposed cocoon it’s that new memories are going to be important if i’m ever going to make that final hard tack in my life that i’ve always dreamed of. the type where after a vigorous and difficult struggle through wave after wave, you’ve somehow managed turn face first into the wind and you’re no longer concerned with what’s behind you only with what’s ahead and ensuring that horizon as as clear as glass.

i can’t keep having these emotional rubber bands from a toxic family keep whipping me all over the place. it’s too much. i don’t wish him or them any ill will. i just need to focus on me before i end up not being able to care for myself.

when i think of the health issues that run in our family it’s crucial that i get through these next three to four dr. appointments, not including things like labs, colonoscopies, MRI’s etc. etc.

i always knew there’d be stress once i lined up these appointments, it’s the impact from the driving that i hadn’t planned for. toss in my father’s voicemail and that was that…face plant into bed for next five days.

it’s slow going and while i did manage to have an “up day” for thanksgiving, i am sidelined by the gritty scratchy eye thing again. that and the whole body still hurts which means the auto-immune system is in over drive and does it suck. mostly it sucks because i know i’m still a long way from any relief. psoriatic arthritis? maybe, all of the men on my father’s side have ended up in wheel chairs so there’s that… ankylosing spondylitis? that’s another maybe except with my father’s diagnosis in 2016 there is a genetic component to consider or rule out. after this many years neither is palatable but at least there’s a regimen to follow, a plan, something to hang your hat on each night and finally sleep with some peace of mind.

the mind, body and gut connection isn’t lost on me. while mindfulness, meditation and yoga can be helpful. i’m at the stage where we need to move to the next step in the process. living in thirty minute increments of effort isn’t normal for someone my age and yes that’s depressing and yes i know that doesn’t help. look up #IBS, #PA or #AS and they share many of the same symptoms including #depression and #anxiety. that’s good and bad. good in that one medication or plan could solve more than one issue. bad in that it takes all of those specialties to test and agree on who the lucky winner is.

the blinds are open again and there are plenty of leftovers lucky me. during the two days i had energy i was pushing through all of my batch cooking and stocking up the freezer with things like homemade chicken soup and stock. two staples for any gluten free and/or anti-inflammation diet. i made another roaster for thanksgiving day and i’ll throw that in the slow cooker for shredded chicken. an afternoon with the kitchenaid and foodsaver should knock out a couple 1lb bags which are perfect for quick meals.

my neighbor who’s recovering from breast cancer says she’s grateful for the up days too. we both joke about the mornings when you wake up and you just know your body isn’t going to hate you that day and you zoom through laundry, cooking, mail, a shower and collapse.

tomorrow supposed to be sunny and warmer than the past two days of single digit wind chills. the plan is to finish the leaves we all got clobbered with here in new england. one day the leaves were on all the trees and then two back to back wind storms mean everyone was buried all at once.

weather looks good? check. leaf blower batteries charged? check. your body still hates you in the morning? check check and triple check.

tomorrow after the leaves?

why i gave up facebook…

 

Winner Takes All…

Winner Takes All…

From one of my favorite stories of the Big Book of A.A. Winner takes all is about a young woman born legally blind but keenly aware she was the lesser wanted child of her siblings. This is the last chapter of the story and it was the one that gave me my Aha moment. Regardless of how things do or don’t turn out with my Father. None of that is relevant. Today is relevant. What I choose to think and feel is relevant. How my actions reflect those thoughts and feelings are relevant.

It’s hard when you have to say goodbye to a parent, especially one who’s still living. I don’t hate my Father but I don’t like him either and that’s a very valid feeling. I wish him the best in whatever capacity that might mean for him today. For myself? I’m moving forward to continue my healing process.

Hope for me are the positive things I can see on the horizon. Those in the front window of my imaginary car. The rear view mirror serves me no purpose any longer. It’s utility is reserved only for short and subtle reminders of where I’ve been and where I never want to return.

Although my Father may have been the primary cause for stuffing and swallowing my feelings of guilt and shame all these years. That doesn’t mean it’s a permanent state of being. The choice is mine, on a daily basis.

Today. Today I choose to be happy and I hope you’ll do the same. ~R

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Thursday’s With Karen Resume…

Thursday’s With Karen Resume…

I decided to reach out to my previous talk therapist and see is she was willing to work me in some how. To my relief and amazement she said yes. Is insurance a fit? Check. What about Video Conference? Check. What a relief… I dunno. It’s such a huge change in service of basic comfort level I guess I’m a bit overwhelmed, in a good way.

This means not having to start from scratch. This means safety on all of the topics I’ve ever needed to discuss in therapy, including the most sensitive of them all. One layer deeper in fact and well, I’m just grateful.

This means having to rely on the commuter rail but that might not be such a bad thing. The ride is scheduled to be an hour give or take so it’s just figuring out the stop to park I guess.

With my discount the rail and subway passes are affordable. I thought it was going to be much more but now park and ride seems like the way to go. Gives me that chance to work on public anxiety both good and bad. (Oh and get that frigging lens fixed jackass!! You want real photos, not just iPhotos!)

I know, I know. Things have been up and down health wise so timing has been an issue. It’ll turn into one of those random first thing I think of one morning and then obsess until it’s done all last minute. Ah yes, thank you ADHD, gotta luv ya…said no one ever.

Tonight I take a deeper breath and rest a little easier knowing I now have a safe place to land.  That’s not only a huge piece of the medical puzzle out of the way it’s also a way to reclaim my identity. I haven’t shot with my Nikon in ages and that’s definitely gotta change.

the lens robert…

yeah i know…

do you want to miss this opportunity? you know, back bay, south end, down town, all of your favorite architecture?

no, no i really don’t actually. i’d like to build a darkroom at some point. i have a story to tell…

then get your ass moving…

Thank you Universe. As usual your timing was impeccable.

 

 

Trying to keep positive…

Trying to keep positive…

these flare ups suck when then take me out of my routine. you know the drill. something triggers that familiar ‘un-happy’ gut feeling. not yet excruciating but you know it’s just a matter of time.

today i was finally able to run errands after being in bed for the past 3 days. the familiar dull painful and mentally distracting headache. more than that actually. eyes, forehead, ears where the psoriasis patches ache 24/7. then the joints kick in and your spine feels achey but can only be soothed temporarily and for unpredictable durations.

however…

i’m blessed to have learned the chef skills i did in my twenties and i’m blessed to have this period ranch style kitchen to spread out and feed myself. with my putting off seeing a PCP appt. at least i’ve gotten better at my diet which removes a huge variable once i do see a dr.

it’s allowed me the space and ability to experiment how to reverse, as much as i can, some of the effects once they begin. bone broth is an amazing gut recovery for instance so now i always keep shelf stable varieties on hand when i need to calm things down a bit.

with the availability of things like flax milk and flax wraps it makes it pretty easy to incorporate those omega-3’s for organic fruit smoothies, add in Garden of Life plant protein and that’s a great way  to start the day.

so… while i still try to work up to going to the dr’s i can at least reduce some anxiety that i’m eating the best i can.

the fear of the dr. thing is proving to be more challenging than i thought. i do have a G.I. dr. appt in Nov. and i know i at least need to get back to regular colonoscopies. with my families history of colon cancer that’s pretty much a non-negotiable. my fear comes with the exposing of my body and the fear and vulnerability of those feelings that trigger memories that are very terrifying for me.

while i’m grateful for the breather i have between now and November to try and prepare myself. it’s tough to find a balance between how much thought you need to give to your symptoms. diet alone isn’t allowing me to manage things now it just buys me recovery time post flare up. it’s the trigger that’s been elusive.

meaning, yes you have to pay attention to IBS but you also have to manage your anxiety and depression. i may not be able to control whatever auto-immune issue or A.S. issue is out of my control and beating me up physically, but i am able to shape how i view my situation.

today was a post flare up recovery day. let’s hope it lasts as long as my last 10 day up time window. fall’s coming and this yard work never ends. lol.

xo ~r

It’s been awhile…

It’s been awhile…

just checking in and i want to be clear when it comes to my previous therapist you asked if you could follow along and i had said yes. at the time i didn’t see the harm, in hindsight it would leave me feeling too exposed.

i’m not truly sure what made things change course so abruptly and while a full and honest explanation would be respectful i certainly won’t hold my breath. when a man discloses something as sensitive as childhood sexual abuse, it can be a very delicate balancing act i’m fully aware. if it was a subject you didn’t feel comfortable with or capable of fully embracing than i wish that had simply been said.

at any rate. please do not read or follow along. i’m not good at being a unicorn remember?

#PTSD is still part of life, the anxiety of medical and prescription transition number three has now been completed. with my exchange plan i was afraid to get routine services, with medicare and BCBS medigap i can finally start to relax a bit. Prescriptions are what they are. I think the days of $5 copays, unless it’s very generic and widely used, are starting to become a rarity. unless i’m in some deductible period or the dreaded donut hole. Egads….

mental health wise i think things are proving to have a symbiotic effect. when my body isn’t aching from every square nodule, i’m up and about and i don’t need 1/2 hour epsom salt baths to get going either.

my recent bout with #IBS, or at least that was what we ‘thought’ it might be two years ago, knocked me offline for 4 days straight. so you’re in bed in agony because you’ve been tossing and turning for 4 days and nights, your hips hurt, you feel like you can’t bend or twist enough to get down to that last itsy bitsy stetch of muscle that will finally make you say ahhhhh….it eludes you and you beg for more sleep.

my last flare up with 3-4 days of no eating and/or just bone broth really let whatever was in my system pass out of my gut so my stomach finally felt normal. with the malaise of aches pains coming and going so i dropped 10 pounds, not a bad thing, i’ll take it.

not sure if it’s the yoga and stretching i’ve been doing on the deck but the more i move the better i feel. now that i’m down to 185lbs from 220;bs i can definitely feel a difference. well, when i can move anyway.

for now i’m just keeping busy gardening which really is a good workout i have to say. whipping a 100ft garden hose around is pretty fun and great arm and shoulder work. the constant up and down around the deck helps the legs since it’s semi-uneven down to the pond level.

i’m getting better little by little. mindfulness, meditation, stretching, healthy eating and super baby steps yoga seems to be bringing a much needed rhythm and routine to things.

now. time to get my damn Nikon lens fixed, i need a trip to NYC… ~r

 

thursday…8:37 PM

thursday…8:37 PM

…bad day today. one of those days where my body let’s me know how much it hates me by making every inch of it ache. brain fog pushing against you while trying to string together sequential thoughts.

coffee first, no, not coffee…which…backtrack, cats…yeah cats first…no no not that either…bathroom definitely bathroom…everything hurts. back, shoulders, neck, legs, feet, knees, hips. i want to crawl back into bed but have to try and keep moving.

on these days i measure my accomplishments by task completed and in as few steps as possible. i hate being physically winded when my brain is overloaded, makes pushing back against the rage and frustration of simple things a lot more difficult.

8:54pm the tv just came on by itself. happens every once and awhile and doesn’t bother me oddly enough. must be vern or my sister having some fun, nothing to lose sleep over.

cuckoo clock strikes early and the gentle tick tock resumes… funny how they speed up or slow down depending on the humidity. the living room humidifier needs refilling and i think i need a fire tonight. soothes the arthritis.

flashbacks can come in all sorts of forms i think. like dreamscapes that seamlessly work their way into your thoughts and before you realize it you’re transported right back to that particular moment in time…

i have tunnel vision and i’m looking at a long concrete walkway, it dips down at the middle and then leads to a set of steps. patches of grass but mostly dirt to the right, tallish grass along the rusty chain link fence to the left. a long row of identical single story apartments were on the other side.

i never liked the concrete stairs, too granular and hurt your knees and hands when playing. we must have had a front door but i never recall one. my film only ever sees it with through the screen door, shafts of light coming right filling the small living area.

a faux avocado finished console style record player was front and center. can’t remember where she got it but she was happy trying to refinish it. some combination of avo green pain and black and somehow you got some wood grain. lines of black mingling with the more predominant and shiny looking green. one large round speaker on the front with some gold’ish fabric for a cover. i’d play my peter pan record on it over and over.

9:21pm tired, exasperated, frustrated. trying not to let my depression and anxiety get the best of me so i’ll pick this up later. writing about things does seem to help.

like unpacking a dusty leather bound chest from the attic and taking things out one by one. in a place of silence and calm without distraction. even if my body isn’t cooperating, i still know i’m one of the lucky ones.

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